About the Bash
This musical benefit is the brainchild of Chris Beutler, who was diagnosed with amyotrophic lateral sclerosis, or ALS, in fall of 2019. ALS, a nervous system disease that weakens muscles and impacts physical function, is better known as Lou Gehrig’s disease.
ALS is fatal and there is no cure, but Beutler is committed to raising awareness and fighting for proactive solutions for families living with ALS. His vision is to use the platform of music and the arts to support this community that is currently underfunded and underserved.
Prior to diagnosis, 54-year-old Beutler was a musician, avid cyclist, and advertising executive. He was a bass player in a local new wave 80’s band, Bangah, and has remained active in the local music scene ever since. A Maryland native, Beutler is reaching out to local musical artists in hopes of bringing them all together in a compassionate manner to serve the ALS community of Maryland.
Beutler’s progress has been slow by many standards, though he uses a cane and a NIV (non-invasive ventilator). He is cared for by his wife, Laura, and their two teenage daughters.
Proceeds from this year’s event will go to the Maryland-based ALS support organization, Brigance Brigade Foundation (BBF) who provide direct financial support to those living with ALS. Several months ago, Beutler received a grant from BBF for home modifications due to his disability. Now he is trying to pay the kindness forward.